Disability Specific Help: Info, Link and Organizations
Links for a variety of disabilities. Specific disability resources, information, services, support and assistance to suit the needs of your disability.
Some disabilities where I was unable to find enough sites for a web page or I could not group with other disabilities are included in the Miscellaneous Disabilities section below.
Amputee Resources: Information for amputees and others missing limbs.
Brain Injury Resources: Information for TBI, traumatic brain injury, ABI acute brain injury or other forms of brain injury.
Multiple Sclerosis / MS : Information for MS – A chronic progressive disease of the central nervous system characterized by loss of some of the myelin sheath surrounding certain nerve fibers and resulting in speech and visual disorders, tremor, muscular coordination problems, partial paralysis.
Neurodegenerative Diseases: Information for Neurodegenerative diseases – Incurable and debilitating conditions that result in progressive degeneration and / or death of nerve cells. Causing problems with movement (called ataxias), or mental functioning (called dementias).
Spinal Cord Injury : Information on SCI – Accidents or trauma causing damage to the spinal cord resulting in paralysis, partial paralysis or some degree of impairment of muscles, sensory or other body functions.
Spinal Cord Disease : Information on Spinal cord diseases include: Infections including polio; Inflammatory diseases including Guillain-Barre; Autoimmune diseases; Neurodegenerative diseases including ALS and Parkinson disease; Unknown causes including Spinal Bifida.
National Rehabilitation & Research Hospitals : Information on the top 12 adult rehabilitation hospitals in the US selected by US News & World Report. Hospitals consistently chosen for their excellent work in rehabilitation.
Rarer Disability Resources and Organizations
[otw_shortcode_content_toggle title=”American Autoimmune Related Diseases Association – AARDA” opened=”closed”]The American Autoimmune Related Diseases Association AARDA is the only national nonprofit health agency dedicated to bringing a national focus to autoimmunity, the major cause of serious chronic diseases. Autoimmunity is a result of a misdirected immune system that causes one’s own immune system to attack the self. There are over 100 known autoimmune diseases. Approximately 50 million Americans, 20 percent of the population or one in five people, suffer from autoimmune diseases. Women are more likely than men to be affected; some estimates say that 75 percent of those affected–some 30 million people–are women. Still, with these statistics, autoimmunity is rarely discussed as a women’s health issue.
AARDA is dedicated to the eradication of autoimmune diseases, alleviation of suffering and reducing the socioeconomic impact of autoimmunity. Through fostering and facilitating collaboration we seek to use education, public awareness, research, and patient services in an effective, ethical and efficient manner.
[/otw_shortcode_content_toggle] [otw_shortcode_content_toggle title=”National Institute of Neurological Disorders and Stroke – NINDS” opened=”closed”]The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. The US Congress created NINDSs in 1950. It is one of the research institutes and centers that comprise the National Institutes of Health (NIH). NIH is an agency of the Public Health Service in the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for more than 50 years.
The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to reduce the burden of neurological disease.
To accomplish this goal the NINDS:
- Supports and conducts basic, translational, and clinical research on the normal and diseased nervous system through grants-in-aid, contracts, scientific meetings, and through research in its own laboratories, and clinics.
- The Institute also fosters the training of investigators in the basic translational and clinical neuroscience expertise to ensure a vibrant, talented, and diverse work force.
- Seeks better understanding, diagnosis, treatment, and prevention of neurological disorders.
- Promotes the timely dissemination of scientific discoveries and their implications for neurological health to the public, health professionals, researchers, and policy-makers.
NORD has been providing services for more than 30 years. Serving patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community. Our programs and services focused on one ultimate goal: improving the lives of individuals and families affected by rare diseases.
Every day in America, 30 million people wake up to fight the battle with a rare disease. The vast majority are children. For most, there are no cures and few, if any, proven and effective treatments. NORD provides a unified voice for those courageous individuals, and the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone.
[/otw_shortcode_content_toggle] [otw_shortcode_content_toggle title=”Scleroderma Foundation” opened=”closed”]Scleroderma Foundation is the national organization formed in 1998 for people with scleroderma and their families and friends. Our three-fold mission is:
- To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information;
- To promote public awareness and education through patient and health professional seminars, literature and publicity campaigns;
- And to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
The Foundation hosts an annual National Patient Education Conference. The conference offers various educational and networking opportunities for people living with scleroderma, their caregivers, family members and friends. Workshops, panel discussions and other educational sessions are led by the leading scleroderma researchers and healthcare professionals.
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Disclaimer
Access Ape does not endorse any of the websites or organization listed on this page.
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These links were verified as operational: December 2016
